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I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs

 
Tangy

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Prayers sent hf
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hf

hf

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hf
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello again friends hugs

I have not yet been in hospice a week and I am so busy. Meeting new members of my team. Getting phone calls from people who love me, doing with getting a better hospital bed, a different wheel chair (not a better wheelchair though, I am working on fixing that issue).

I also put together a grocery order to be delivered tomorrow. As well as planning with my eldest granddaughter for her visit tomorrow. She is going to help make the livingroom/my bedroom fixed up all cozy (cozier) and cook us some real food! I love my incredibly loving and supportive husband, but he can't cook. He can cook hamburgers, toast, and pasta to go along with jars of spaghetti sauce. I really really miss cooking. Luckily my husband can microwave dinners. I buy the organic frozen dinners and have learned to love cereal. My close friend, who happens to be a nurse brings us fresh produce weekly. I am solo very lucky!

I am going to post this now. Last night I (one finger) typed for an hour and the post poorer away right when I went to post it. Better for me to write shorter messages.

hihugskittyrose
 Quoting: monkeyflower


Im glad you have a great supportive family, op. If you don't mind saying , what are your health issues? I want to share the story of a terminal little boy who had brain cancer...his doctor told him to imagine daily a Pac man eating the tumor away...guess what ? He recovered! The tumor was gone ! Visualization really works. I've been on glp 19 years, I'm a 49 year old female, my sons and I all have autoimmune diseases so I understand being down and sick. Bedridden so much over the last 18 years myself. Whatever your situation, stay strong and know that miracles do happen. God bless you friend.hf
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
OP, get out of hospice. It's state sponsored euthanasia. There is a pattern. They give you morphine and oxygen, so you feel good while you are dehydrating. Then you will end up with pulmonary edema, your lungs fill with water, you get a death rattle and die.

Also, praying for you op.
 Quoting: Anonymous Coward 71408772


Just make sure they are receiving plenty of fluids...my uncle, dad, grandma went by hospice ... they stopped feeding my dad. He had advanced lung cancer but was still up and moving and aware. He died from a blood clot in his lung sooner than we figured, prob a good thing.
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hugs Life is beautiful with you.
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Gods blessings be upon you MonkeyFlower. I'm on hospice for a bad ticker and have one of the best groups and family a person could ask for.
Learn to appreciate each days challenges.
 Quoting: Challenger of the UNKNOWN 78108937


May the Lord grace you with His Presence in Jesus Name hfhf

PS - Where I live, in the mountains of California, the hills positively glow in yellow monkeyflowers in the Spring. I'll think of you when I'm among the flowers, that is unless I too am called away to cross over sooner than I imagine. Your post is a reminder that we should all indeed gather rosebuds while we may!
 Quoting: Anonymous Coward 78368137


Yay! You know about fields of monkeyflowers! They have tiny faces. I love monkeyflowers!hugs

hihugskittyrose
 Quoting: monkeyflower



I've never heard of monkey flowers before. How precious they are as are you my dear!! For others who are not familiar ..

[link to www.wish.com (secure)]


I've had sepsis - it almost killed me. Here is "a" cure (or at least you will feel much much better) In the AM - take about 1 tablespoon of raw sauerkraut. This is a "pre" biotic re-start. Wait about one hour - THEN have your coffee (or whatever it is you like to eat and drink in AM). Throughout the day - drink lots and lots of water. Orange juice mixed with water is good also. Try to eat a little yogurt or sour cream. I like buttermilk! In the PM (before bed) take 600 mg of Magnesium. This will protect your intestinal system. In about one week you will notice a huge improvement. All of these treatments - are to make you feel better- you will actually absorb more of your pain relieving medication - (if you need that) - it will WORK better.

Yes - it is funny how our little GLP family likes to share (honest) health tips! No conspiracy 2 that - and yes - we genuinely care. I think many of us - (on here) here have been around the block a few times - and we have surrendered to the cards life has dealt us. I for one - am working on my "gratitude." I hope today is a good day - and I too am sending you healing thoughts and prayers. I've been through 2 hospice cases with my grandparents- and I know hospice nurses and CLSW and therapists. It is a wonderful organization - and I have nothing but positive experiences with hospice. I've had one friend out on hospice - and he GOT BETTER! That was 5 years ago - and he has never felt better. He said it was a nice rest - (and it allowed his body to heal). He had Stage 4 Cancer (intestinal) - and it is completely gone.
 Quoting: ruser


Praise the Lord! Great info!! hfhf

Hello again friends hf

I did a lot of thinking before deciding to "to public" about my hospice experience. I have known for a while that I am terminally ill. I needed a way to make my hospice adventure mean something to other people.

I decided if just one person could learn from my experience it would be worth my time and effort.

Maybe I can help someone better understand what I is like to be very ill. For me, sometimes scary, but mostly not scary. The thing that really scares me is wanting so badly to know my husband will be ok. He is the love of my life, half of my heart. I don't know how to help him deal with HIS pain, now or later. That at times with kitty for comfort I cry. That is my one big fear. (and I do know God is with me, after all he gave me a kitty for comfort!)

I hope that if one person is helped by my posting here about my hospice time know something about what to expect as best as I can explain it, it is very worth it.

I don't want to talk about my illness or healthcare or medications in detail. I want to tell you about my living life as a person in hospice.

I am so moved by the love, prayers, good thoughts, healing vibes, videos, poems, experiences of other people I have been brought to happy grateful tears a few times.

I have saved somethings to watch, read or listen to everyday. I wish I could reply to every single post others have posted here, but I can't. Time and memory and arthritic hands won't let me. But please know I am awestruck by all of the love and kindness you all have shown me hugs

I shall return. I need to read some GLP stuff...I need my fix. ratdance

hugskittyrose
 Quoting: monkeyflower


OP.. I can't thank you enough for starting this thread and sharing your experience with all of us. Such beauty in a world so messed up is something to be cherished. I will save this thread for a reminder of all the beautiful people and love in this forum.

May the Lord bless your husband and improve his cooking skills chuckle

blwkss
You say there is no God.. but I KNOW there is, experience will "Trump" theory every time ~ Evangelina

It is not the greatness of my faith that moves mountains but my faith in the Greatness of God

TRUTH has Nothing to do with the Number of People Who are Convinced of it.

Silence in the face of evil is itself evil; God will not hold us guiltless. Not to speak is to speak. Not to act is to act.
-Dietrich Bonhoeffer

NO AMOUNT OF EVIDENCE WILL EVER PERSUADE AN IDIOT ~~ MARK TWAIN
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Good morning, monkey!
bighug
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hf

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bump
It's life as we know it, but only just.
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sic ut vos es vos should exsisto , denego alius vicis facio vos change , exsisto youself , proprie
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rose
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Dear Heavenly Father, Bless and Comfort these people...

In Jesus name I pray---Amen.

flowas
Living has taught me one thing; nothing is certain...except salvation through Jesus Christ!
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello GLP friends

I began hospice care at home a few days ago. I am requesting prayers please so I can remain strong for my family and others I am close to. If anyone can give a bit of emotional support please, it is always very welcome as well.

If anyone would like, I can write about life with hospice as well, in this thread.

Also, one amazing wonderful friend here on GLP has been by my side on this journey for a while now. Much love and many hugs to that friend. Thank you! (You know who you arehugs)

~monkeyflower

hugskittyrose
 Quoting: monkeyflower

:Love to you 2:
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello GLP friends

I began hospice care at home a few days ago. I am requesting prayers please so I can remain strong for my family and others I am close to. If anyone can give a bit of emotional support please, it is always very welcome as well.

If anyone would like, I can write about life with hospice as well, in this thread.

Also, one amazing wonderful friend here on GLP has been by my side on this journey for a while now. Much love and many hugs to that friend. Thank you! (You know who you arehugs)

~monkeyflower

hugskittyrose
 Quoting: monkeyflower


Wishing you that which you desire OP...

:hugs from Father:

Your goal of soul growth will be with you.


:choose soul grow:
~kpm~

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rose You and your family are in my thoughts and prayers rose
~With forethought and malice Whitless enacted an EO giving nursing homes immunity from wrongful death prosecutions, forced them to take in infected patients and is responsible for over 6500+ nursing home deaths~
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this is for you :



[link to youtu.be (secure)]
It's life as we know it, but only just.
[link to citizenperth.wordpress.com]
sic ut vos es vos should exsisto , denego alius vicis facio vos change , exsisto youself , proprie
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Hang in there mf! You sound upbeat!

We are thinking of you!
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello again friends hf

I did a lot of thinking before deciding to "to public" about my hospice experience. I have known for a while that I am terminally ill. I needed a way to make my hospice adventure mean something to other people.

I decided if just one person could learn from my experience it would be worth my time and effort.

Maybe I can help someone better understand what I is like to be very ill. For me, sometimes scary, but mostly not scary. The thing that really scares me is wanting so badly to know my husband will be ok. He is the love of my life, half of my heart. I don't know how to help him deal with HIS pain, now or later. That at times with kitty for comfort I cry. That is my one big fear. (and I do know God is with me, after all he gave me a kitty for comfort!)

I hope that if one person is helped by my posting here about my hospice time know something about what to expect as best as I can explain it, it is very worth it.

I don't want to talk about my illness or healthcare or medications in detail. I want to tell you about my living life as a person in hospice.

I am so moved by the love, prayers, good thoughts, healing vibes, videos, poems, experiences of other people I have been brought to happy grateful tears a few times.

I have saved somethings to watch, read or listen to everyday. I wish I could reply to every single post others have posted here, but I can't. Time and memory and arthritic hands won't let me. But please know I am awestruck by all of the love and kindness you all have shown me hugs

I shall return. I need to read some GLP stuff...I need my fix. ratdance

hugskittyrose

 Quoting: monkeyflower



Thank you so much for sharing such a personal experience with us. I am sending much love and a big hug from small town, Indiana. Your husband sound wonderful, how long have you been married? what first attracted you to him. I just got engaged, and love hearing about what makes marriages good, and what helps them last. i will say a prayer for you both.
Shanny
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Monkeyflower, you are a beautiful person with a beautiful soul as conveyed in your writings.

I hope our souls will meet in another realm. Until then, may you be surrounded in God's love and light always. hf

Hugcats
"Who looks outside, dreams; who looks inside, awakes"

"When the student is ready, the teacher will appear"
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God Bless you Monkey Flower....you are so beautiful....
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hi monkeyflower,

May your days be filled with unconditional peace and love as you await our Lord's calling.
I will pray for you all! hugs

"When you go through deep waters, I will be there with you" Isaiah 43:2
-------------------------------------

"I've Seen Enough Of War. I've Seen Enough Of Death. I Don't Want To Be A Public Person Anymore."

SKOL!
Free2day

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I reconfigured my home so that my Icon is in the right place, and I pray for you and Dakota (BBQBoys son) thrice daily.
 Quoting: Lance Roseman From BC


Thank you from my whole heart for your prayers Lance! I have kept a candle burning for Dakota since I first read about his health issues. I pray for him often. I had kidney failure a few years ago. I was so very lucky my kidneys started to work normally after 14 dialysis treatments. I was so lucky. I call it a miracle.

hugskittyrose
 Quoting: monkeyflower


Hi monkeyflower,

I've read somewhere you like information. Well I have some information I would like to send you. (pdf) How can I receive your email address?

Be Healed In Lord Jesus Christ name!

Best,
Jeff
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01/23/2020 05:15 PM

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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Dear Monkeyflower:
smile_hear

That you think of others and how this can be made a "meaningful experience" for others shows your very deep inner concern for your fellow humans, irrespective of your own situation. In this you are following the GOLDEN RULE - do unto others as you wish to be done to - and as such you are a role model for others.

You are simultaneously laying down a "track" in the earth's genetic mind, which can be seen as a computer-like system where files can be stored and downloaded by others. There are so many files currently in the genetic mind which support violent behaviour, selfishness, corruption and aggression. These need to be rewritten. So know that by doing THE VERY OPPOSITE, you are rewriting these "violent" information sources, and also supporting those who are in the gravest of circumstances, and who wish to do something positive to help others progress in their understanding.

And through it, you will also grow and take that wisdom wherever you are going, to the next life, to the next reunion, just as this life has involved many reunions. I salute you for your love for others, and am sending you a big hug for you and your husband, embracing all those who support and love you.

Colour Crusader.

Last Edited by Colour Crusader on 01/23/2020 05:16 PM
Colour Crusader: may we fill the world with vibrant colour, constant critical assessment and deep compassion, moving ever forward towards a paradise of our own creating

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First Born Son

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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
OP.... I LOVE YOU!
Your light still shines strong!
I pray for safe passage for you, but please stay as long as you are able.
Just know that you are loved!
Anonymous Coward
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OP, you sound like an incredibly strong, brave woman. My prayers are with you and your family.
monkeyflower  (OP)

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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello again friendshugs

Wow! Thank you everyone. I am awestruck by the loving support and selfless kindness in this thread.

Yesterday my eldest granddaughter and her daughter spent the day at my house. My beautiful granddaughter is making my room (actually the family room) all cozy and comfy for me. My job was to play with the baby and snuggle her. (I am sooo blessed)

We talked, ate raspberry/BlackBerry pie warm from the oven. We laughed and cried and it was beautiful. My precious beautiful granddaughter promised me she will stay til the end. She promised me that her daughter and all of my grandchildren will know me. She is so strong, loving, brave and beautiful.

By the time she and my great granddaughter went home I was very tired but felt so spoiled and lucky. She will be back to finish making my living space cozy in a few days. I really can't imagine a better day. It was to me, a perfect day.

I haven't slept well the last couple of nights, and days have been so busy. Meeting my hospice team, getting into a hospice routine. Finally today I slept, a lot. Yay! My only visitor was my nurse. I already love her. She is gentle, open, caring and honest. I came to this thread to write but mostly dozed off when I started to type. The best thing is when I do sleep I sleep peacefully now. No fears,(Except for my concerns about my husband when I am gone). I sleep well because I know I am loved. By my blood family, my family of friends, and my GLP family.

I truly can not find the words to thank my GLP family. I shared things from this thread with my granddaughter yesterday and you guys made my badass granddaughter cry. She was so moved by what she read and heard and saw. You all have my granddaughter hope hugshugs

She has more hope now for the future and what the future might hold for her daughter. Hope, what a beautiful gift you all have her. Thank you.hugs

I met my husband thru friends years ago. We didn't realize we were dating until people told us. We were both newly divorced and had told ourselves no dating, no relationships. We were both done. This year we will be together 31 years. We have been and stayed close since the day we met. I am not sure exactly how long we have been married. I could wake my husband to ask him but he would probably have to look for our marriage license. We married for health insurance and tax reasons. Our commitment is the love and trust we share. For he and i, that is and was our reason for marrying. Also, I was a package deal. We share my(our) sons from my first marriage. My husband must be doing the dad stuff right, as he was best man at all 3 of their weddings. He played a big and important role in raising them to be loving, compassionate respectable men they are now.

Thanks for reading my written babbling. Physically I could feel a bit better, but mentally, spiritually and emotionally I am floating on my own soft and gentle safe cloud. I might write more later.

Sending hugs and love to all of you...

hugskittyrose

Last Edited by monkeyflower on 01/24/2020 03:24 AM
.
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
PS - Where I live, in the mountains of California, the hills positively glow in yellow monkeyflowers in the Spring. I'll think of you when I'm among the flowers, that is unless I too am called away to cross over sooner than I imagine. Your post is a reminder that we should all indeed gather rosebuds while we may!
 Quoting: Anonymous Coward 78368137


Yay! You know about fields of monkeyflowers! They have tiny faces. I love monkeyflowers!hugs

hihugskittyrose
 Quoting: monkeyflower


..GIVING ANY THOUGHTS TO ONE LAST 'SPECIAL TRIP' B 4 U TAKE THAT UBER DMT JOURNEY?

I WANT TO COMMEND YOU ON AND FOR YOUR BRAVERY HERE..AND THANK YOU!..FOR YOUR COURAGE, STRENGTH AND 'GUIDANCE'. I'D BE TOO MUCH OF A 'PUSS' TO DO ANYTHING LIKE THIS. CAPS.
 Quoting: uh 78248651
Only Me
Strawberry Girl

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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
I'm so happy to hear that your granddaughter is being so helpful. Having supportive family makes all the difference, doesn't it? My family is that way too, so I know that when my time comes, it will be much the same, thankfully. And I bet that pie was amazing :)

Have a good night!
Goodbye, halcyon days...

 There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable.

There is another theory mentioned, which states that this has already happened.
Avenger1

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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
Hello again friendshugs

Wow! Thank you everyone. I am awestruck by the loving support and selfless kindness in this thread.

Yesterday my eldest granddaughter and her daughter spent the day at my house. My beautiful granddaughter is making my room (actually the family room) all cozy and comfy for me. My job was to play with the baby and snuggle her. (I am sooo blessed)

We talked, ate raspberry/BlackBerry pie warm from the oven. We laughed and cried and it was beautiful. My precious beautiful granddaughter promised me she will stay til the end. She promised me that her daughter and all of my grandchildren will know me. She is so strong, loving, brave and beautiful.

By the time she and my great granddaughter went home I was very tired but felt so spoiled and lucky. She will be back to finish making my living space cozy in a few days. I really can't imagine a better day. It was to me, a perfect day.

I haven't slept well the last couple of nights, and days have been so busy. Meeting my hospice team, getting into a hospice routine. Finally today I slept, a lot. Yay! My only visitor was my nurse. I already love her. She is gentle, open, caring and honest. I came to this thread to write but mostly dozed off when I started to type. The best thing is when I do sleep I sleep peacefully now. No fears,(Except for my concerns about my husband when I am gone). I sleep well because I know I am loved. By my blood family, my family of friends, and my GLP family.

I truly can not find the words to thank my GLP family. I shared things from this thread with my granddaughter yesterday and you guys made my badass granddaughter cry. She was so moved by what she read and heard and saw. You all have my granddaughter hope hugshugs

She has more hope now for the future and what the future might hold for her daughter. Hope, what a beautiful gift you all have her. Thank you.hugs

I met my husband thru friends years ago. We didn't realize we were dating until people told us. We were both newly divorced and had told ourselves no dating, no relationships. We were both done. This year we will be together 31 years. We have been and stayed close since the day we met. I am not sure exactly how long we have been married. I could wake my husband to ask him but he would probably have to look for our marriage license. We married for health insurance and tax reasons. Our commitment is the love and trust we share. For he and i, that is and was our reason for marrying. Also, I was a package deal. We share my(our) sons from my first marriage. My husband must be doing the car stuff right, as he was best man at all 3 weddings. The player a big and important role in raising them to be loving, compassionate respectable men they are now.

Thanks for reading my written babbling. Physically I could feel a bit better, but mentally, spiritually and emotionally I am floating on my own soft and gentle safe cloud. I might write more later.

Sending hugs and love to all of you...

hugskittyrose
 Quoting: monkeyflower


Hope Is The Thing With Feathers
By Emily Dickinson

"Hope" is the thing with feathers -
That perches in the soul -
And sings the tune without the words -
And never stops - at all -

And sweetest - in the Gale - is heard -
And sore must be the storm -
That could abash the little Bird
That kept so many warm -

I've heard it in the chillest land -
And on the strangest Sea -
Yet - never - in Extremity,
It asked a crumb - of me.
"Who looks outside, dreams; who looks inside, awakes"

"When the student is ready, the teacher will appear"
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Re: I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs
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