I started Hospice at home, prayers and emotional support appreciated. UPDATE: Our Beloved Monkey Flower Has Passed - 7 April 2020 - ljs

all my deepest prayers and good support to you, OP.

Praise the Lord in all He does and allows. For His Glory we acknowledge Him and trust Him in all that He allows. May the Lord continue to bless you and have you come closer to him in all your ways

sentcha a message!

Amazing about your friend.

What kind of sauerkraut did you use.

You got it!

I have some ideas that are worth considering.

Thoughts and prayers are with you monkeyflower.

Another member brought it to my attention that my "Make Hospice Great Again" comment was taken the wrong way.
In no way was I trying imply anything negative of making a joke about OP's situation.
What my thought process was at the time was that my father recently passed and was a retired veteran of the army.
Since Trump has been in office "MAGA" veteran care has greatly improved by leaps and bounds.
As my father was under care of the VA I greatly appreciated that.
My intent was just wishing you "great care".
I apologize if it was misconstrued as sometimes I don't realize everyone doesn't have the same thought process as I do.

Prayers sent

You're a good man Yo, I figured you were being misinterpreted! We had a bad one on here yesterday and got him removed. I looked at his account, and no posts since 2015, until yesterday!!! After a 5 year hiatus, hard to imagine coming on here and being a jerk!!!?

Yo Adrian

I wasn't at all offended by your comment. It just made me curious as to why hospice needed to be made great again and I have always found them to be great.

Also, having read your posts I knew you didn't mean it in a harmful way. Thank you!

Hello again friends

I have not yet been in hospice a week and I am so busy. Meeting new members of my team. Getting phone calls from people who love me, doing with getting a better hospital bed, a different wheel chair (not a better wheelchair though, I am working on fixing that issue).

I also put together a grocery order to be delivered tomorrow. As well as planning with my eldest granddaughter for her visit tomorrow. She is going to help make the livingroom/my bedroom fixed up all cozy (cozier) and cook us some real food! I love my incredibly loving and supportive husband, but he can't cook. He can cook hamburgers, toast, and pasta to go along with jars of spaghetti sauce. I really really miss cooking. Luckily my husband can microwave dinners. I buy the organic frozen dinners and have learned to love cereal. My close friend, who happens to be a nurse brings us fresh produce weekly. I am solo very lucky!

I am going to post this now. Last night I (one finger) typed for an hour and the post poorer away right when I went to post it. Better for me to write shorter messages.

Prayers to you and yours Monkey Flower.

Lots of love!

Ohhhh, I hate that when it happens. Keep them short and frequent to be safe!

Hello again friends

I did a lot of thinking before deciding to "to public" about my hospice experience. I have known for a while that I am terminally ill. I needed a way to make my hospice adventure mean something to other people.

I decided if just one person could learn from my experience it would be worth my time and effort.

Maybe I can help someone better understand what I is like to be very ill. For me, sometimes scary, but mostly not scary. The thing that really scares me is wanting so badly to know my husband will be ok. He is the love of my life, half of my heart. I don't know how to help him deal with HIS pain, now or later. That at times with kitty for comfort I cry. That is my one big fear. (and I do know God is with me, after all he gave me a kitty for comfort!)

I hope that if one person is helped by my posting here about my hospice time know something about what to expect as best as I can explain it, it is very worth it.

I don't want to talk about my illness or healthcare or medications in detail. I want to tell you about my living life as a person in hospice.

I am so moved by the love, prayers, good thoughts, healing vibes, videos, poems, experiences of other people I have been brought to happy grateful tears a few times.

I have saved somethings to watch, read or listen to everyday. I wish I could reply to every single post others have posted here, but I can't. Time and memory and arthritic hands won't let me. But please know I am awestruck by all of the love and kindness you all have shown me

I shall return. I need to read some GLP stuff...I need my fix.

Thank you Monkey Flower. I have been wondering about hospice at home. I'll be there shortly after you. You make me happy that it is going well. Ive been sending prayers up for you and your family and making plans this helps a lot. May your feet be swift and wings of love bring you home.

Sorry to hear that. I hope God gives you the strength to be strong in your time of need. Stay strong for your family. Hold on to that because it's powerful.

I looked up your thread just now- I am about to go to bed. I just wanted you to know that you were on my mind as I end my day and will be in my nightly prayer.

<3

Please feel free to message me any time with any questions at all. I love your quote from the Little Prince. I have a picture of the Little Prince and his rose in a frame near my bed. My wish for you is inner peace. I am very blessed to have that for myself.

I don't care about your apathy.

Thank you muchly for the laugh!



Last Edited by monkeyflower on 01/22/2020 01:41 AM

It means so much to me that you and so many others, all over the world are praying for me. So much love and kindness! It blows my mind! Thank you.

I reconfigured my home so that my Icon is in the right place, and I pray for you and Dakota (BBQBoys son) thrice daily.

Thank you from my whole heart for your prayers Lance! I have kept a candle burning for Dakota since I first read about his health issues. I pray for him often. I had kidney failure a few years ago. I was so very lucky my kidneys started to work normally after 14 dialysis treatments. I was so lucky. I call it a miracle.

Passing is not something to be stressed over. It is a release. That release will matter more to those you leave behind then to you. Gather your clan, your family. Make amends so they do not go through angst or anguish for holding unsaid words in. Get all of the unsaid words out even if they might be harsh. At least you can address them. And they will not hold onto your passing with more anguish then there will already be.

I don't mean to be harsh. But if you are in hospice, those are issues that should/need be dealt with. With the clarity of cleaning up conundrums of what ever sort that may have occurred in your Clan or family, you will have a far more peaceful passing, and you can clear up any kerfuffle and forgive those who would otherwise hold regrets.

Try not to leave others regrets behind, those are the things you can no longer shape when you are gone. And I will keep praying.

May The Lord pass by you and give you Heavenly peace....

Amen

Continued prayers and for you.

:FlowerSmiley:

So much love to you.
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