Hospice patient. Real Time. Real World. UPDATE: Noslot Gained His Wings Last Night. pg 11 | |
Noslot
(OP) User ID: 77976450 United States 09/04/2019 12:05 AM Report Abusive Post Report Copyright Violation | NOTICE The following may be disturbing for some. It contains graphic detail about incontinence. Thank you for mentioning this. Man diapers... in other words it’s perhaps a polite way to talk about incontinence. IMO there is no way you can appreciate how sudden incontinence wrecks your soul unless you’ve experienced it. I may know in my head that I’m protected, but I will sometimes wonder if I’m leaking or if others can smell me. And if I require help cleaning myself and/or changing my diaper I will often just stare off into space to divorce myself from this moment. I know it’s not my fault, but that is little comfort. Just know that I feel profound shame. I need for those who help to try and not show there disdain if they decide to help me. I can feel your disdain. It’s expressed in your face and tentative hands. This morning my hospice team visited. They told me things are now changing a bit faster than before. My nurse hugged me and told me she would be by my side. That choked me up. Vincint Amor Patriae |
Anonymous Coward User ID: 75181441 United States 09/04/2019 12:14 AM Report Abusive Post Report Copyright Violation | May your journey be as peaceful as possible. You are a remarkable person for starting this thread and sharing your experience. I was with my father when he passed. It was then I knew we have a soul. God Bless you. |
tiger1
User ID: 77774028 United States 09/04/2019 09:38 AM Report Abusive Post Report Copyright Violation | NOTICE The following may be disturbing for some. It contains graphic detail about incontinence. Thank you for mentioning this. Man diapers... in other words it’s perhaps a polite way to talk about incontinence. IMO there is no way you can appreciate how sudden incontinence wrecks your soul unless you’ve experienced it. I may know in my head that I’m protected, but I will sometimes wonder if I’m leaking or if others can smell me. And if I require help cleaning myself and/or changing my diaper I will often just stare off into space to divorce myself from this moment. I know it’s not my fault, but that is little comfort. Just know that I feel profound shame. I need for those who help to try and not show there disdain if they decide to help me. I can feel your disdain. It’s expressed in your face and tentative hands. This morning my hospice team visited. They told me things are now changing a bit faster than before. My nurse hugged me and told me she would be by my side. That choked me up. Hugs and prayers for you, on this journey. Praise God from Whom all Blessings flow !!! |
Anonymous Coward User ID: 71433052 United States 09/04/2019 09:47 AM Report Abusive Post Report Copyright Violation | NOTICE The following may be disturbing for some. It contains graphic detail about incontinence. Thank you for mentioning this. Man diapers... in other words it’s perhaps a polite way to talk about incontinence. IMO there is no way you can appreciate how sudden incontinence wrecks your soul unless you’ve experienced it. I may know in my head that I’m protected, but I will sometimes wonder if I’m leaking or if others can smell me. And if I require help cleaning myself and/or changing my diaper I will often just stare off into space to divorce myself from this moment. I know it’s not my fault, but that is little comfort. Just know that I feel profound shame. I need for those who help to try and not show there disdain if they decide to help me. I can feel your disdain. It’s expressed in your face and tentative hands. This morning my hospice team visited. They told me things are now changing a bit faster than before. My nurse hugged me and told me she would be by my side. That choked me up. Prayers for you. I wish I had some magical words to comfort but just know there's real people reading your thread and hoping the best for you. |
Anonymous Coward User ID: 77846190 United States 09/04/2019 10:12 PM Report Abusive Post Report Copyright Violation | I'm requesting folks to come forward for Fred and give him your prayers. He was in a lot of pain this afternoon and he had to go to the ER. I'm not at liberty to reveal much else. His pain spiked and he had to go take care of it. I'm not used to his absence during the day any more than a few hours. I'm worried. We developed such a close bond offline and I am forever changed. Please give him your best prayers. He is an incredible man. |
Only Me
Strawberry Girl User ID: 12651613 United States 09/05/2019 12:50 AM Report Abusive Post Report Copyright Violation | I'm requesting folks to come forward for Fred and give him your prayers. He was in a lot of pain this afternoon and he had to go to the ER. I'm not at liberty to reveal much else. Quoting: TheTwilightZone His pain spiked and he had to go take care of it. I'm not used to his absence during the day any more than a few hours. I'm worried. We developed such a close bond offline and I am forever changed. Please give him your best prayers. He is an incredible man. When he mentioned things were moving much faster, I was worried about that :'(. poor Fred. I hope we get to speak to him again. I'm not quite ready to let him go. Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
Anonymous Coward User ID: 75181441 United States 09/05/2019 12:56 AM Report Abusive Post Report Copyright Violation | |
Noslot
(OP) User ID: 77979125 United States 09/05/2019 01:03 AM Report Abusive Post Report Copyright Violation | May your journey be as peaceful as possible. You are a remarkable person for starting this thread and sharing your experience. Quoting: Anonymous Coward 75181441 I was with my father when he passed. It was then I knew we have a soul. God Bless you. Thank you. Thank you. I'm requesting folks to come forward for Fred and give him your prayers. He was in a lot of pain this afternoon and he had to go to the ER. I'm not at liberty to reveal much else. Quoting: TheTwilightZone His pain spiked and he had to go take care of it. I'm not used to his absence during the day any more than a few hours. I'm worried. We developed such a close bond offline and I am forever changed. Please give him your best prayers. He is an incredible man. Hi again. Thanks for asking for the prayer requests. That meant a lot, but you knew that. We have developed a friendship and the only incredible man is you. Perhaps one day you can share your journey in more detail here with us. What you've had to overcome speaks to that life spark that you never let burn out. This "relationship" is the best thing that's happened to me in my journey. We're just 2 guys who said the hell with it and spoke deaths name loud and clear. I spoke with several docs and they understood that I did’t want heroic efforts or curative measures. Just symptom management. The x-rays and EKG were unremarkable. This chest pain is well painful. They gave me some of the good stuff as the nurse put it. (1ea 2mg Dilaudid) and I’m now taking 10ml of morph every hour as needed. Hospice is getting new orders over to there pharmacy for delivery. I sure don’t want to experience this day again, but guess what? LOLL yeah you know! Thanks again to all. Vincint Amor Patriae |
Noslot
(OP) User ID: 77979125 United States 09/05/2019 01:07 AM Report Abusive Post Report Copyright Violation | When he mentioned things were moving much faster, I was worried about that :'(. Quoting: Only Me poor Fred. I hope we get to speak to him again. I'm not quite ready to let him go. Well they haven't evicted me from hospice so I guess I have time to continue our bantering, :) Thank you. Vincint Amor Patriae |
Only Me
Strawberry Girl User ID: 12651613 United States 09/05/2019 02:27 AM Report Abusive Post Report Copyright Violation | When he mentioned things were moving much faster, I was worried about that :'(. Quoting: Only Me poor Fred. I hope we get to speak to him again. I'm not quite ready to let him go. Well they haven't evicted me from hospice so I guess I have time to continue our bantering, :) Thank you. You're back! And with the good stuff! Dilauded works great, but it doesn't last very long. When I had my 2nd brain surgery, they gave me a machine that would give me morphine when I pushed a button. That worked way better. I wonder if you could ask for something like that if it gets too bad. Just a thought. Glad you are back home and not evicted from hospice (giggle). I hope you get some relief. Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
Fluffy Pancakes
User ID: 77981576 United States 09/05/2019 06:42 PM Report Abusive Post Report Copyright Violation | Take the good stuff and try to stay ahead of the pain as long as you can...And spend your time as you want. But make sure you talk to your wife as much as possible. She sounds as awesome as you! Even if I don't comment, I am paying attention here, and praying for you and the other gentleman who stepped in and is in hospice. Peace and serenity! Things are bad enough, there is no need to make anything up. ~Fluffy "Never interrupt an enemy in the process of destroying himself." Quercitin and zinc...Get it. Take it. Visit howbad.info...If you took the shot, for sure. |
Only Me
Strawberry Girl User ID: 12651613 United States 09/05/2019 10:26 PM Report Abusive Post Report Copyright Violation | When he mentioned things were moving much faster, I was worried about that :'(. Quoting: Only Me poor Fred. I hope we get to speak to him again. I'm not quite ready to let him go. Well they haven't evicted me from hospice so I guess I have time to continue our bantering, :) Thank you. I will banter with you for as long as you like. My mom says I talk too much, but what does she know? :p Goodbye, halcyon days... There is a theory which states that if ever anyone discovers exactly what the Universe is for and why it is here, it will instantly disappear and be replaced by something even more bizarre and inexplicable. There is another theory mentioned, which states that this has already happened. |
tiger1
User ID: 77774028 United States 09/05/2019 10:48 PM Report Abusive Post Report Copyright Violation | I'm requesting folks to come forward for Fred and give him your prayers. He was in a lot of pain this afternoon and he had to go to the ER. I'm not at liberty to reveal much else. Quoting: TheTwilightZone His pain spiked and he had to go take care of it. I'm not used to his absence during the day any more than a few hours. I'm worried. We developed such a close bond offline and I am forever changed. Please give him your best prayers. He is an incredible man. Prayers said. Praise God from Whom all Blessings flow !!! |
Anonymous Coward User ID: 77846190 United States 09/05/2019 10:48 PM Report Abusive Post Report Copyright Violation | Things took a turn today. I'm not sure what is going on. I'm hoping he is okay and doing what he needs to do. His earlier email wasn't all that encouraging. I hope he shows up here and tells me off. Anything. Prayers, please. |
Kamchatka
Culturally outdated by choice User ID: 76556707 United States 09/05/2019 11:20 PM Report Abusive Post Report Copyright Violation | |
Fluffy Pancakes
User ID: 77983097 United States 09/06/2019 10:37 AM Report Abusive Post Report Copyright Violation | Fred passed last night at 10pm Mountain time. What a tremendous man. Praying for his family. Things are bad enough, there is no need to make anything up. ~Fluffy "Never interrupt an enemy in the process of destroying himself." Quercitin and zinc...Get it. Take it. Visit howbad.info...If you took the shot, for sure. |
TheLordsServant
User ID: 6244976 United States 09/06/2019 10:56 AM Report Abusive Post Report Copyright Violation | |
Anonymous Coward User ID: 77846190 United States 09/06/2019 10:57 AM Report Abusive Post Report Copyright Violation | Fred passed last night at 10pm Mountain time. Quoting: Fluffy Pancakes What a tremendous man. Praying for his family. Thank you for the confirmation. It was an honor to be with him through this process while he was in Hospice. It was through email and at times very heavy. He is a great man. I may not have said the right things, but I was there for him to unload anything. The one thing he told me was that "when you are in a foxhole, you don't care who is with you as long as they have your back". I'm going to miss our time together. Again, thank you for the closure. |
Anonymous Coward User ID: 71433052 United States 09/06/2019 11:03 AM Report Abusive Post Report Copyright Violation | Our Father, which art in heaven, Hallowed be thy Name. Thy Kingdom come. Thy will be done in earth, As it is in heaven. Give us this day our daily bread. And forgive us our trespasses, As we forgive them that trespass against us. And lead us not into temptation, But deliver us from evil. For thine is the kingdom, The power, and the glory, For ever and ever. Amen. |
Anonymous Coward User ID: 77846190 United States 09/06/2019 11:36 AM Report Abusive Post Report Copyright Violation | I'm going to share one last thing. I am going to keep our conversations to myself. To me, this was a sacred time in the life of an inspirational human being. We had discussed finding closure here at GLP and with each other. I had told him I didn't want any goodbyes. He honored that. Additionally, I told him if I didn't hear from him that I would continue sending pictures. His last email to me was yesterday afternoon. I woke up this morning not knowing Fred had passed. He was on my mind since yesterday. I sent an email this morning with pictures of my garden. I think Fred did say goodbye to me as this was part of my email to him this morning.......... "The birds are everywhere this morning and very loud. They sound like they are in casual conversation with one another. As its getting lighter, they are getting louder or there are more of them." We all know Fred loved birds. |
WHEEZY
User ID: 77869817 United States 09/06/2019 11:59 AM Report Abusive Post Report Copyright Violation | Fred passed last night at 10pm Mountain time. Quoting: Fluffy Pancakes What a tremendous man. Praying for his family. Thank you for telling us..We all knew this time was coming but it still hit me. I took a deep breath. May the Lord have mercy on Fred's soul and may his family be comforted.. FOUR TERMS FOR OUR PRESIDENT! |
WHEEZY
User ID: 77869817 United States 09/06/2019 12:06 PM Report Abusive Post Report Copyright Violation | [quote:TheTwilightZone:MV80MTEzNDc5Xzc0NzM3NzUwXzYwQkY5RTY2] Fred, there is so much more to you than the dying person. You are also still the living person with the fears we all have when it comes to the end. No one has the answers. TheTwilightZone Thank you for being there for Fred...Keep writing. I for one am interested in you also...If you can, do like Fred and write what you desire.. Blessings to you. Wheezy FOUR TERMS FOR OUR PRESIDENT! |
Anonymous Coward User ID: 77846190 United States 09/06/2019 12:31 PM Report Abusive Post Report Copyright Violation | [quote:TheTwilightZone:MV80MTEzNDc5Xzc0NzM3NzUwXzYwQkY5RTY2] Quoting: WHEEZY Fred, there is so much more to you than the dying person. You are also still the living person with the fears we all have when it comes to the end. No one has the answers. TheTwilightZone Thank you for being there for Fred...Keep writing. I for one am interested in you also...If you can, do like Fred and write what you desire.. Blessings to you. Wheezy Fred would get mad at me for withholding. :D I'll give this some consideration. Thank you for your interest in my story. Fred also had clarity of thought that I don't have. He had that knack of being able to say the things I felt but couldn't express. |
Captain Casey Jones
User ID: 77360736 United States 09/06/2019 12:37 PM Report Abusive Post Report Copyright Violation | |
Cynical Realist
Senior Forum Moderator User ID: 6898705 United Kingdom 09/06/2019 01:12 PM Report Abusive Post Report Copyright Violation | Pinned. IF YOU HAVE A FEVER DO NOT LOWER IT WITH MEDS.... A FEVER IS AN IMMUNE SYSTEM RESPONSE TO A PATHOGEN (VIRUS, BACTERIA ETC..) IT MEANS YOUR IMMUNE SYSTEM IS WORKING PROPERLY....DONT USE DRUGS TO LOWER YOUR TEMP. |
~Jazz~
Forum Administrator 09/06/2019 01:17 PM Report Abusive Post Report Copyright Violation | See you on the other side my friend. Prayers for the family. To know where your heart is, look where your mind goes when it wanders. A rock in bad hands killed Abel. A rock in good hands killed Goliath. It isn't about the rock. A true warrior fights not because he hates the one in front of him, but because he loves those behind him. INTP-A |
Deep1111
User ID: 58205502 United States 09/06/2019 01:21 PM Report Abusive Post Report Copyright Violation | Thank you so much for starting this thread OP. I am currently in my 4th year of fighting Stage IV rectal cancer with tumors in the liver and possibly lungs based on my last CT scan. I am really interested in following this thread to see kinda what I can expect once I get to the hospice stage. Not quite there yet. Quoting: lsufanatic Thanks Again OP, Geaux Tigers Keep up the good fight! I am battling stage 3 rectal cancer that was stage 2 at surgery due to the chemo and radiation I went through before surgery. I am doing my mop up chemo right now and hopeful this is the last time I have to do it. Praying for remission... Jesus said: He who seeks, let him not cease seeking until he finds; and when he finds he will be troubled, and when he is troubled he will be amazed, and he will reign over the All. Keep calling it mental illness. 1,000 years ago, they called us see'ers [link to www.youtube.com (secure)] |
Anonymous Coward User ID: 77823082 United States 09/06/2019 01:27 PM Report Abusive Post Report Copyright Violation | My sister died of cancer on June 16th of this year. She and I are/were both medical professionals (Med Tech/Nurse). Sissy was resistant to Hospice in the beginning. When the doctor recommends Hospice, it's the final wake up call. Hard to swallow. I let her ponder the thought for a few weeks. She was determined to die in our home in the mountains. No facilities. Home Hospice was the only answer. As it turned out, it was quite the blessing. No more running back and forth to the doctors office, meds paid for and delivered to our door. The nurses were splendid. Weren't pushy but available when we needed them. When she finally passed, it was very quick and for the most part painless. The hospice people instructed me what to do for her but didn't hover. Only came when I asked them to. She wasn't fearful, quite the contrary, when she was "aware", she was in good spirits. I wouldn't have done things a different way. That said, each person's experience is different. A lot depends on where you want to spend your last days. Home is always best IMO. God Bless and good luck on your journey |
Anonymous Coward User ID: 75945643 United States 09/06/2019 01:38 PM Report Abusive Post Report Copyright Violation | I'm going to share one last thing. I am going to keep our conversations to myself. To me, this was a sacred time in the life of an inspirational human being. We had discussed finding closure here at GLP and with each other. I had told him I didn't want any goodbyes. He honored that. Additionally, I told him if I didn't hear from him that I would continue sending pictures. His last email to me was yesterday afternoon. I woke up this morning not knowing Fred had passed. He was on my mind since yesterday. I sent an email this morning with pictures of my garden. Quoting: TheTwilightZone I think Fred did say goodbye to me as this was part of my email to him this morning.......... "The birds are everywhere this morning and very loud. They sound like they are in casual conversation with one another. As its getting lighter, they are getting louder or there are more of them." We all know Fred loved birds. Thanks for sharing I hope the birds chatter comforted him as he moved on. Peace |
cosmicgypsy
User ID: 4194509 United States 09/06/2019 01:55 PM Report Abusive Post Report Copyright Violation | Rest in peace, lovey..... You never change things by fighting the existing reality. To change something build a new model that makes the existing model obsolete. -Buckminster Fuller ...I adapt to the unknown, under wandering stars I've grown, by myself, but not alone... [link to www.youtube.com (secure)] |